Claire Wineland: Cystic fibrosis activist dies at 21

Claire's Place Foundation  Facebook

Her YouTube channel gained over 250,000 subscribers, and although she had to leave the platform in 2017 due to her illness, she maintained her following and campaigning on Twitter and Instagram.

Wineland experienced a stroke due to a blood clot on August 26 after undergoing a successful double lung transplant, according to the statement.

Her family later chose to take the vlogger, who was diagnosed with cystic fibrosis at birth, off life support.

Wineland honestly and at times painfully documented her battle with cystic fibrosis, a genetic disorder that causes severe damage to the lungs and limits the ability to breathe.

According to the US Cystic Fibrosis Foundation, more than 70,000 people suffer from the condition worldwide.

Bernie Sanders, 76, also tweeted: "I would like to acknowledge Claire Wineland who passed away last night". Among her many words of wisdom, Wineland once said, "Beauty is found everywhere and once you stop trying to run from your life, once you start taking pride in it and learning how to give back, you will be completely free".

"She was surrounded by love and with her mother Melissa Yeager and father John Wineland; they saw her into this world for her first breath and were with her for her last", chairman of the board of the Claire's Place Foundation Laura McHolm wrote in a Facebook post.

"When I was born, I had a life expectancy of 5 years old", she once explained in a September 2015 video. And every single time I get close to that point where I'm supposed to die, there's a new technology that comes out, a new medicine, new ways of treating cystic fibrosis.

She was one red hot spark of inspiration and joy, wasn't she?

Wineland's health took a turn for the worse in recent months, prompting the double lung transplant. "It's not like we walk around like dogs with our tails in between our legs all the time".

In lieu of flowers, the family is asking for donations to be made to Claire's foundation.

Throughout her teens, Wineland's YouTube videos offered an intimate look at her life.

Throughout her life, Wineland tried not to take herself too seriously, joking in videos about the absurdities swirling around her - like people stopping her at Whole Foods to tell her eating more pineapple or doing a mushroom cleanse would cure her, according to CNN.

"Death is Inevitable. Living a life we can be proud of is something we can control", the California native once said.

Words of love and gratitude have filled social media since Wineland's passing, and those she has helped and encouraged will not soon forget her.

Claire is an organ donor and her mother has confirmed that she has already saved the lives of two people.



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