Over 1 lakh patients in India die before they turn 20

May 8 is celebrated as World Thalassemia Day

Amid lack of treatment facilities, people suffering from thalassemia are unknowingly transmitting the disease to their children.

While countries like Pakistan, Dubai, Abu Dhabi and Saudi Arabia have made carrier testing compulsory for relatives of thalassaemia patients long back, there has been no move to put in place prevention and control program at the national level in India. Proper diagnosis before child birth is required to prevent it from getting passed down to the off-springs.

- Every year 10,000 children with thalassaemia major are born in India.

It is a blood disorder which causes weakening and destruction of the red blood cells, affects the formation of hemoglobin in the body and causes mild or severe anemia.

"Children who have mild thalassemia may feel exhausted or irritable, have shortness of breath, feel dizzy or lightheaded, and have pale skin, lips or nail beds compared to their normal colour". It usually exists in three forms, thalassemia trait or asymptomatic carrier stage where the patient does not show any symptom and remains undiagnosed if not tested, thalassemia intermedia which is less severe than thalassemia major, hence they require less blood transfusions and thalassemia major which is the severest and results in causing ineffective production of RBCs and hypochromic anaemia. It is a genetic disorder due to which a patient can not make enough hemoglobin found in Red Blood Cells (RBC's).

The blood transfusion requirement increases as the person grows. Each red blood cell can contain between 240 and 300 million molecules of haemoglobin.

However, the prevalence of Thalassemia is not uniform in the country.

The World Thalassemia Day will be observed in the country as elsewhere across the globe on Tuesday to create awareness about the deadly disease and the importance of blood donation.

The need for psychosocial support is even greater in India where treatment poses a financial burden as well.



Latest news

DA apologises for messy break-up with Patricia de Lille
De Lille came under scrutiny after the DA charged her with misconduct earlier this year following various claims. I have always maintained that I am fighting for my right to natural justice and to clear my name.

Vladimir Guerrero Jr. Hits Monster Home Run Off a Hotel
Last year, Rios also began the year in the starting rotation going to the bullpen after returning from the disabled list. Nick Tepesch earned his first save by pitching the final three innings and allowing no runs and one hit.

Aliens exist? Triangular shaped UFO caught following path of lighting
Lead study author Mr Christopher Bishop explains that planets in all the five groups have an atmosphere and possibility of life. From the movie, more footage could be viewed of different UFOs traveling interior of lightning bolts from all over the world.

MotoGP Jerez test: Yamaha's Zarco tops the timesheets
Leading the way was Monster Yamaha Tech 3's Johann Zarco , who claimed second on Sunday behind Repsol Honda's Marc Marquez. Andrea Iannone (Team Suzuki ECSTAR) - +8,2144.

Bus in flames in central Rome (2)
The incident caused massive traffic disruption in the area and there was a brief moment of panic when a tyre exploded. A tourist said: "We immediately thought of a bomb". "Instinctively I hid behind the counter of the store".

Other news